He wrapped his arms around my waist, and I realized he was crying. That’s definitely not what I expect when I pick up my son from after school care. Usually, they’re excitedly bounding out to see me, especially on Bojangles Thursday. It is a tradition to pick up food from Bojangles on Thursdays, since Dad has choir practice and we can enjoy fried chicken without worrying about Dad’s blood … [Read more...] about Having Each Others’ Back
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The best laid plans…
I like some of my MS symptoms better than others. Wait, “like” may be going overboard. I tolerate some of my MS symptoms better than others. Nope, too bland. I despise some of my MS symptoms less than others. It’s not politically correct, but then again, what is these days? I handle the known much better than the unknown. I know each and every day that I need to use a mobility device. I … [Read more...] about The best laid plans…
Three Words for Graduates
The DJs on the morning radio show mentioned their daughter is finishing 5th grade and moving on to middle school. They asked the question, “What 3 words of advice would you give to a graduate?” I looked forward to the answers, since my older son J is also finishing elementary school this week. As I listened to the advice (ex. “Just keep learning”), I thought about what my … [Read more...] about Three Words for Graduates
Which MS Drug Is Best For You?
On May 27, the FDA approved Zinbryta (daclizumab) for treatment of relapsing-remitting multiple sclerosis (RRMS). It can be prescribed to those who had inadequate response to two or more of the disease-modifying drugs. It’s a once a month self-injection. I’m astounded how many medicines are available these days. I was diagnosed the week that Rebif became the fourth approved … [Read more...] about Which MS Drug Is Best For You?
Independence
May 25th is World MS Day. This year’s theme is Independence. #strongerthanMS MS doesn’t stop me from being me. I’m a purple person, so of course my rollator is purple (her name is Violet). I don’t walk around with a sterile medical cane. My cane is covered in neon bubbles. MS does not take away my personality – it just gives me some different opportunities to show it … [Read more...] about Independence
Using a calendar
What is My MS Toolset? I have assembled a set of tools to help manage my MS. Tips, tricks, apps, checklists - anything that can make it easier to stay prepared for the unpredictable life with MS. Before I was diagnosed with MS, I thought I did a good job of handling my life. Everything was so uncomplicated – just my wonderful husband, our adorable house, and my satisfying job. I … [Read more...] about Using a calendar