I have MS, I'm a Mom...but there's more to the story
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It's Shot Night. Part of me hates Shot Night. Shot Night is my weekly reminder that I have MS. It's not the needle stick that bothers me, it's what it represents. When we pull that medicine out of the fridge to bring it to room temperature, I'm reminded that I have an incurable disease. On a more positive note, I got my confirmation for the Working Woman's Luncheon sponsored by the local … [Read more...] about
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One thing that MS has made me do is examine my priorities. I've always had a hard time saying no, and I have a tendency to overload my schedule. Now that I have less energy, I'm more careful about how I expend it. I'm finding it easier to say no, and to cut out those things in my life that aren't worth the hassles. For example, I've been dissatisfied with one organization for quite a while. … [Read more...] about
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Finally started feeling like myself again on Saturday! It seems so trivial to be able to say I could go grocery shopping and go to the mall, but those were huge steps for me. I felt good for the first time in days. I had an interesting discussion with people at church today about a cure for MS. A few months ago, David Lander (who played Squiggy on Laverne & Shirley) spoke at an MS conference … [Read more...] about
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Home from work for the second day in a row. Hopefully this will do the trick, and I'll get my energy back. I'm learning that it's all right to be honest about being tired. I've tried to be polite and not burden people, but I'm giving up on that route. Last night, I went to choir practice, and someone gave me a hard time because we only show up when one of us has a solo. Well, a major reason … [Read more...] about
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One of the scariest things about this stupid illness is wondering whether something you feel is "normal" or the start of an MS attack. A couple of days I got very, very tired and starting having headaches. If it weren't for MS, I'd just be thinking, "Oh, I've just been pushing myself too hard. And with the recent weather changes, it's not a surprise that my sinuses are acting up." Instead, … [Read more...] about
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Well, last night was the first time I was alone for my shot. Things went fine. I do have a nice big bruise at the needle site. I still have to learn how to get the gauze pad unsealed and ready while holding the syringe. I bruised because I jiggled the syringe. The bruise doesn't hurt. I've had fewer side effects this time, and I haven't had to be so faithful on the medicine. In other words, … [Read more...] about
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